Psychological impact on primary caregivers of family members undergoing palliative treatment

a review on quality of life

Authors

  • Macarena Aberg Cobo Pontificia Universidad Católica Argentina
  • Ramiro Moscardi Pontificia Universidad Católica Argentina
  • Javiera Ortega Consejo Nacional de Investigaciones Científicas y Técnicas CONICET. Centro de Investigación de Psicología y Psicopedagogía (CIPP)-Facultad de Psicología y Psicopedagogía, Universidad Católica Argentina

DOI:

https://doi.org/10.31053/1853.0605.v81.n2.44824

Keywords:

caregivers, palliative care, quality of life

Abstract

Primary caregivers of family members undergoing palliative care provide significant care, and as a result, their quality of life may be adversely affected. A systematic review was conducted to synthesize the evidence on caregiver’s quality of life. Pubmed database and the digital library of the Universidad Católica Argentina were used. Thirteen articles were reviewed that addressed the following topics: general quality of life, impact on physical, emotional, social and spiritual dimensions, relationship between caregiver gender and quality of life. It is evident in the literature reviewed the importance of an adequate assessment of signs and symptoms in family caregivers in order to provide comprehensive assistance to promote their quality of life.

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Author Biographies

  • Macarena Aberg Cobo, Pontificia Universidad Católica Argentina

    Licenciada en Psicología por la Pontificia Universidad Católica Argentina (UCA).

  • Ramiro Moscardi, Pontificia Universidad Católica Argentina

    Licenciado en Psicología por la Pontificia Universidad Católica Argentina (UCA). Profesor Superior en Psicología (UCA). Especializando en psicología clínica con orientación Sistémica en la Universidad de Buenos Aires (UBA). Psicoterapeuta cognitivo-conductual. Docente universitario en las carreras de Psicología y Psicopedagogía (UCA).

  • Javiera Ortega, Consejo Nacional de Investigaciones Científicas y Técnicas CONICET. Centro de Investigación de Psicología y Psicopedagogía (CIPP)-Facultad de Psicología y Psicopedagogía, Universidad Católica Argentina

    Licenciada en Psicología por la Pontificia Universidad Católica Argentina (UCA). Doctoranda en psicología en la UCA. Becaria Doctoral de CONICET. Investigación centrada en el abordaje psicológico y familiar de enfermedades neuromusculares y otras enfermedades crónicas.

References

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2. Pastrana T, De Lima L, Wenk R, Eisenclas J, Monti C, Rocafort J, Centeno C. Atlas de cuidados paliativos de Lationamerica. Houston: IAHPC Press; 2012. Disponible en: https://dadun.unav.edu/bitstream/10171/34465/1/Atlas%20de%20Cuidados%20Paliativos%20de%20Latinoamerica.pdf

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13. Wu LF, Lin C, Hung YC, Chang LF, Ho CL, Pan HH. Effectiveness of palliative care consultation service on caregiver burden over time between terminally ill cancer and non-cancer family caregivers. Support Care Cancer. 2020 Dec;28(12):6045-6055. doi: 10.1007/s00520-020-05449-2.

14. Weaver M, Wichman C, Darnall C, Bace S, Vail C, MacFadyen A. Proxy-Reported Quality of Life and Family Impact for Children Followed Longitudinally by a Pediatric Palliative Care Team. J Palliat Med. 2018 Feb;21(2):241-244. doi: 10.1089/jpm.2017.0092.

15. Harputluoğlu N, Alkan Özdemir S, Yılmaz Ü, Çelik T. Evaluation of Primary Caregiver Parents' Quality of Life in Pediatric Palliative Care with the WHOQOL-Bref (TR). Turk Arch Pediatr. 2021 Sep;56(5):429-439. doi: 10.5152/TurkArchPediatr.2021.20262.

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19. Toffoletto MC, Reynaldos Grandón KL. Determinantes sociales de salud, sobrecarga familiar y calidad de vida de cuidadores familiares de pacientes oncológicos en cuidados paliativos. Rev salud pública. 2019; 21(2):154–60. doi: 10.15446/rsap.v21n2.76845.

20. Ullrich A, Ascherfeld L, Marx G, Bokemeyer C, Bergelt C, Oechsle K. Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients. BMC Palliat Care. 2017 May 10;16(1):31. doi: 10.1186/s12904-017-0206-z.

Published

2024-06-28

Issue

Section

Literature Reviews

How to Cite

1.
Aberg Cobo M, Moscardi R, Ortega J. Psychological impact on primary caregivers of family members undergoing palliative treatment: a review on quality of life. Rev Fac Cien Med Univ Nac Cordoba [Internet]. 2024 Jun. 28 [cited 2024 Dec. 18];81(2):415-31. Available from: https://revistas.unc.edu.ar/index.php/med/article/view/44824

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