Cleft Lip/Palate diagnosis in early childhood of Nicaragua: impact of the diagnosis on a family level

Authors

  • Javiera Ortega Pontificia Universidad Católica Argentina
  • Natalia Vázquez Pontificia Universidad Católica Argentina Consejo Nacional de Investigaciones Científicas y Técnicas

DOI:

https://doi.org/10.31053/1853.0605.v75.n4.19931

Keywords:

cleft lip, impact assessment, health, mental healt

Abstract

Introduction: Children with congenital anomalies are a vulnerable population in the development of mental health problems. The cleft lip and palate (FLAP) is a structural congenital anomaly. Objective: To study the impact at family level of the FLAP diagnosis. Methodology: Descriptive and quantitative design and cross-sectional scope. A self-administered questionnaire consisting of an informed consent, a sociodemographic data questionnaire, the Child Behavior Checklist and open questions, was constructed. The sampling was intentional and composed by 50 cases. Results: The CBCL 1.5-5 indicated an average of M = 53.60 (SD 23.53) in the general scale of behavioral and emotional problems, M = 14.86 for the internalizing scale, and M = 19.04 for the externalizing scale. Conclusion: The diagnosis of a cleft palatal lip is a difficult experience in parents, who experience this moment in a negative way, with sadness and fear. Preschool children with a diagnosis of cleft lip and palate are a population at risk of developing psychopathological disorders, mainly of the externalizing type.

Downloads

Download data is not yet available.

Author Biographies

  • Javiera Ortega, Pontificia Universidad Católica Argentina

    Facultad de Psicología y Psicopedagogía, Centro de Investigaciones de Psicología y Psicopedagogía.

    Becaria de Iniciación a la Investigación

    Docente Adscripta Estadística aplicada a la psicología, Facultad de Psicología y Psicopedagogía

  • Natalia Vázquez, Pontificia Universidad Católica Argentina Consejo Nacional de Investigaciones Científicas y Técnicas

    Facultad de Psicología y Psicopedagogía, Centro de Investigaciones de Psicología y Psicopedagogía.

    Becaria Postdoctoral de CONICET

    Profesora Adjunta Estadística aplicada a la psicología, Facultad de Psicología y Psicopedagogía

    Profesora Adjunta Psicología general y evolutiva, Facultad de Filosofía y Letras

References

1 Ministerio de Salud de Nicaragua MINSA (2015). Gobierno firma convenio de cooperación con Operación Sonrisa Internacional y Operación Sonrisa Nicaragua.

2 Tercyak, K. P., O'neill, S. C., Roter, D. L., & McBride, C. M. (2012). Bridging the communication divide: A role for health psychology in the genomic era. Professional Psychology: Research and Practice, 43(6), 568.

3 Biesecker, B. B. (2010). Genetic Counselling: Psychological Issues. Encyclopedia of Life Sciences (ELS). doi: 10.1002/9780470015902.a0005616.pub2

4 Dinc, L., & Terzioglu, F. (2006). The psychological impact of genetic testing on parents. Journal of clinical nursing, 15(1), 45-51.

5 Kessler, S., Kessler, H., Ward, P., & Opitz, J. M. (1984). Psychological aspects of genetic counseling. III. Management of guilt and shame. American journal of medical genetics, 17(3), 673-697.

6 McAllister, M., Davies, L., Payne, K., Nicholls, S., Donnai, D., & MacLeod, R. (2007). The emotional effects of genetic diseases: implications for clinical genetics. American Journal of Medical Genetics Part A, 143(22), 2651-2661.

7 Eiser, C. (1990). Chronic childhood disease: An introduction to psychological theory and research: Cambridge University Press.

8 Snyder, H. T., Bilboul, M. J., & Pope, A. W. (2005). Psychosocial adjustment in adolescents with craniofacial anomalies: a comparison of parent and self-reports. The Cleft palate-craniofacial journal, 42(5), 548-555.

9 Pope, A. W., & Snyder, H. T. (2005). Psychosocial adjustment in children and adolescents with a craniofacial anomaly: age and sex patterns. The Cleft palate-craniofacial journal, 42(4), 349-354.

10 Austin, J., Semaka, A., & Hadjipavlou, G. (2014). Conceptualizing genetic counseling as psychotherapy in the era of genomic medicine. Journal of genetic counseling, 23(6), 903-909.

11 Biesecker, B. B. (2001). Goals of genetic counseling. Clinical genetics, 60(5), 323-330.

12 Biesecker, B. B., & Peters, K. F. (2001). Process studies in genetic counseling: peering into the black box. American Journal of Medical Genetics, 106(3), 191-198.

13 Resta, R., Biesecker, B. B., Bennett, R. L., Blum, S., Estabrooks Hahn, S., Strecker, M. N., & Williams, J. L. (2006). A new definition of genetic counseling: National Society of Genetic Counselors’ task force report. Journal of genetic counseling, 15(2), 77-83.

14 Cohen, J. S., & Biesecker, B. B. (2010). Quality of life in rare genetic conditions: a systematic review of the literature. American Journal of Medical Genetics Part A, 152(5), 1136-1156.

15 Achenbach, T. M., & Rescorla, L. A. (2000). Child behavior checklist for ages 1 1/2-5. ASEBA. University of Vermont.

16 Ivanova, M. Y., Achenbach, T. M., Rescorla, L. A., Harder, V. S., Ang, R. P., Bilenberg, N., & Dobrean, A. (2010). Preschool psychopathology reported by parents in 23 societies: testing the seven-syndrome model of the child behavior checklist for ages 1.5–5. Journal of the American Academy of Child & Adolescent Psychiatry, 49(12), 1215-1224.

17 Vázquez, N., & Samaniego, V. C. Estandarización del Child Behavior Checklist para preescolares de población urbana de Argentina. Revista Evaluar, 17(1), 65-69

18 Ashtiani, S., Makela, N., Carrion, P., & Austin, J. (2014). Parents' experiences of receiving their child's genetic diagnosis: A qualitative study to inform clinical genetics practice. Am. J. Med. Genet., 164(6), 1496-1502.

19 Endriga, M. C., & Kapp-Simon, K. A. (1999). Psychological issues in craniofacial care: state of the art. The Cleft palate-craniofacial journal, 36(1), 3-11.

20 Vázquez, N. (2015) Problemas comportamentales y emocionales en niños preescolares, su relación con la calidad del vínculo parental. Comparación entre niños que padecen enfermedades genéticas, trastornos psíquicos y población general. Tesis Doctoral

21 Rescorla, L. A., Achenbach, T. M., Ivanova, M. Y., Harder, V. S., Otten, L., Bilenberg, N., ... & Dobrean, A. (2011). International comparisons of behavioral and emotional problems in preschool children: parents' reports from 24 societies. Journal of Clinical Child & Adolescent Psychology, 40(3), 456-467.

22 Pope, A. W., Tillman, K., & Snyder, H. T. (2005). Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies. The Cleft palate-craniofacial journal, 42(5), 556-559.

23 Pope, A. W., & Snyder, H. T. (2005). Psychosocial adjustment in children and adolescents with a craniofacial anomaly: age and sex patterns. The Cleft palate-craniofacial journal, 42(4), 349-354.

24 Hall, H. R., Neely-Barnes, S. L., Graff, J. C., Krcek, T. E., Roberts, R. J., &Hankins, J. S. (2012). Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation. Issues in comprehensive pediatric nursing, 35(1), 24-44.

Published

2018-12-02

Issue

Section

Original Papers

How to Cite

1.
Ortega J, Vázquez N. Cleft Lip/Palate diagnosis in early childhood of Nicaragua: impact of the diagnosis on a family level. Rev Fac Cien Med Univ Nac Cordoba [Internet]. 2018 Dec. 2 [cited 2024 Nov. 22];75(4):270-8. Available from: https://revistas.unc.edu.ar/index.php/med/article/view/19931

Similar Articles

31-40 of 822

You may also start an advanced similarity search for this article.