Propiedades del CP-QOL-PCQ para medir calidad de vida relacionada con la salud en niños, niñas y adolescentes con parálisis cerebral en Argentina

Silvina Berra; Natalia Herrera Sterren; Javier Sánchez Rosas

doi:10.31053/1853.0605.v80.n3.40042

Authors

Silvina Berra CONICET; Facultad de Ciencias Médicas, Universidad Nacional de Córdoba. http://orcid.org/0000-0003-3618-7041
Natalia Herrera Sterren Universidad Nacional de Córdoba. Consejo Nacional de Investigaciones Científicas y Técnicas. Argentina.
Javier Sánchez Rosas 3. Universidad Católica de Temuco, Facultad de Ciencias de la Salud, Departamento de Psicología, Chile.

DOI:

https://doi.org/10.31053/1853.0605.v80.n3.40042

Keywords:

cerebral palsy, disabled children, adolescence, surveys and questionnaires, reliability and validity

Abstract

Introduction: The impact of cerebral palsy (CP) on quality of life requires the incorporation of subjective assessments of health, functional status, and well-being. A specific health-related quality of life (HRQoL) measure for CP is the Australian CP-QOL questionnaire, whose version for caregivers (PCQ) was adapted in Argentina. This study aimed to achieve the final structure and evaluate the reliability and validity of the CP-QOL-PCQ for the Argentine child and adolescent population.

Methods: 100 caregivers of people from 3 to 24 years old with a diagnosis of CP from Argentina participated. In addition to the CP-QOL-PCQ, the KIDSCREEN-27 questionnaire was applied. Analysis of response distributions of all items, inter-item correlations, and internal consistency of the scales were performed using Cronbach's alpha. The convergent validity of the instrument was tested through the correlation with scales of similar content from the KIDSCREEN and through a priori hypotheses in groups of different ages and functional impairment.

Results: A final structure of the CP-QOL-PCQ was achieved with 8 multidimensional scales, with satisfactory inter-item correlations (>0.30) and internal consistency (>0.70). Moderate and high correlations (r>0.30) were obtained between similar dimensions of the CP-QOL-PCQ and the KIDSCREEN with similar concepts. Higher HRQoL scores were confirmed at a younger age and at a lower level of functional impairment (Cohen's d >0.20).

Conclusion: This provides evidence of reliability and validity to be expected for a HRQoL measurement instrument that can be implemented in the Argentine child and adolescent population with CP.

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Author Biographies

Silvina Berra, CONICET; Facultad de Ciencias Médicas, Universidad Nacional de Córdoba.

Prof. Titular de Métodos y Técnicas de la Investigación Científica; Investigadora adjunta CONICET-INICSA; Facultad de Ciencias Médicas, Universidad Nacional de Córdoba.

Natalia Herrera Sterren, Universidad Nacional de Córdoba. Consejo Nacional de Investigaciones Científicas y Técnicas. Argentina.

Medical Surgeon (Faculty of Medical Sciences, UNC)

Doctoral Fellow. Center for Research and Studies on Culture and Society (CIECS), CONICET, UNC, Argentina.

Assistant Professor in Cell Biology, Embryology and Histology (Medicine, FCM, UNC).

Javier Sánchez Rosas, 3. Universidad Católica de Temuco, Facultad de Ciencias de la Salud, Departamento de Psicología, Chile.

PhD. in Psychology (UNC). Current work: Psychological and Educational Evaluation Laboratory, Faculty of Psychology. National University of Cordoba. Revista Evaluar’s Editor

Research interests: emotion and achievement motivation, self-regulation, educational assessment, and quality of instruction. Development and evaluation of scales.Research Interests: achievement emotion and motivation, self-regulation, educational assessment, and instructional quality.

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