Development of an intervention to reduce self-stigma in outpatient mental health service users in Chile
DOI:
https://doi.org/10.31053/1853.0605.v72.n4.13836Palabras clave:
servicios de salud mental, estigma social, salud mental, America Latina, Ensayo Clínico Controlado AleatorioResumen
Background:
Latin America is characterized by a high prevalence of public stigma toward those with mental illness, and significant selfstigma among labeled individuals, leading to social exclusion, low treatment adherence, and diminished quality of life. However, there is no published evidence of an intervention designed to address stigma in the region. In light of this, a psychosocial intervention to reduce self-stigma among users with severe mental illness was developed and tested through an RCT in two regions of Chile. Objectives: To describe the development of the psychosocial intervention, assess its feasibility and acceptability, and evaluate its preliminary impact. Methods: An intervention was designed and is being tested, with 80 users with severe mental illness attending two community mental health outpatient centers. To prepare the intervention, pertinent literature was reviewed, and experts and mental health services users were consulted. Feasibility and acceptability were assessed, and impact was analyzed, based on follow-up qualitative reports by the participants. Results: The recovery-oriented, ten-session group intervention incorporates the Tree of Life narrative approach, along with other narrative practices, to promote a positive identity change in users, and constructivist psychoeducation, based on case studies and group discussions, to gather tools to confront self-stigma. The intervention was feasible to implement and well evaluated by participants, family members, and center professionals. Participants reported increased self-confidence, and the active use of anti-stigma strategies developed during the workshop. Conclusions: This group intervention promises an effective means to reduce stigma of mental illness within Chile and other Latin American countries and feasibility to scale up within mental health services.
Resumen: Antecedentes: Latinoamérica se ha caracterizado por ser una región que presenta una alta prevalencia de estigma público hacia la enfermedad mental, y niveles significativos de auto-estigma entre las personas con diagnóstico psiquiátrico, conduciendo a un alto nivel de exclusión social, baja adherencia al tratamiento y una disminución de la calidad de vida. Sin
embargo, no se dispone de evidencia científica sobre alguna intervención diseñada para abordar el estigma a nivel local o regional. Considerando lo anterior, se ha desarrollado y evaluado a través de una ensayo clínico aleatorizado una intervención psicosocial para reducir el auto-estigma entre usuarios de servicios de salud mental en dos regiones de Chile.Objetivos:
Describir el desarrollo de una intervención psicosocial anti-estigma y evaluar su confiabilidad, aceptabilidad e impacto inicial entre un grupo de suarios.Métodos: La intervención fue diseñada y evaluada en 80 usuarios con diagnóstico de trastorno mental severo que estuvieron asistiendo a dos centros ambulatorios de salud mental comunitaria. Para elaborar la intervención, se revisó literatura científica pertinente y se conformaron paneles de discusión con expertos y usuarios de servicios de salud mental. La factibilidad y la aceptabilidad fueron evaluadas y se analizó su impacto inicial entre los participantes, en base
a una serie de evaluaciones cualitativas.Resultados: Se generó una intervención orientada a la recuperación, que considera 10 sesiones grupales e incorpora el abordaje del ‘Árbol de la Vida’, además de otras prácticas narrativas, para promover un cambio positivo en la identidad de los usuarios; adicionalmente, se incluyen elementos de psicología constructivista, basada en estudio de casos y grupos de discusión, para que los usuarios adquieran herramientas para afrontar el estigma. La intervención fue implementada apropiadamente y bien evaluada por participantes, familiares y profesionales de los centros de salud mental. Los participantes reportaron un incremento de la autoconfianza y un activo uso de las estrategias anti-estigma desarrolladas durante las sesiones de trabajo. Conclusiones: La presente intervención grupal demostró un promisorio efecto en la reducción del estigma hacia la enfermedad mental en Chile, y cuenta con el potencial para ser implementado en otros servicios de salud mental de Latinoamérica.
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Referencias
1. Kessler RC, Aguilar-Gaxiola S, Alonso J, Chatterji
S, Lee S, Ormel J, et al. The global burden of mental
disorders: An update from the WHO World Mental
Health (WMH) Surveys. Epidemiol Psichiatr Soc.
2009;18(1):23–33.
2. Whiteford H, Degenhardt L, Murray CJL, Vos T, Lopez
AD. Commentary: Improving the mental health and
substance use estimates in the Global Burden of Disease
study: strengthening the evidence base for public
policy. Int J Epidemiol [Internet]. 2014 Apr [cited 2015
May 5];43(2):296–301. Available from: http://www.ncbi.
nlm.nih.gov/pubmed/24639446
3. Corrigan P, Rao D. On the self-stigma of mental illness:
stages, disclosure, and strategies for change. Can
J Psychiatry. 2012;57(8):464–9.
4. Fung KMT, Tsang HWH, Chan F. Self-stigma, stages
of change and psychosocial treatment adherence among
Chinese people with schizophrenia: a path analysis. Soc
Psychiatry Psychiatr Epidemiol [Internet]. 2010 May [cited
2015 Apr 14];45(5):561–8. Available from: http://www.
ncbi.nlm.nih.gov/pubmed/19649752
5. Wahl OF. Stigma as a barrier to recovery from mental
illness. Trends Cogn Sci [Internet]. 2012 Jan [cited 2015
Apr 20];16(1):9–10. Available from: http://linkinghub.elsevier.
com/retrieve/pii/S136466131100235X
6. Clement S, Schauman O, Graham T, Maggioni F,
Evans-Lacko S, Bezborodovs N, et al. What is the impact
of mental health-realted stigma on help-seeking? A
systematic review of quantitative and qualitative studies.
Psychol Med. 2015;45(1):11–27.
7. Acuña C, Bolis M, PAHO. Stigmatization and access
to health care in Latin America: Challenges and perspectives.
2005.
8. Mascayano F, Schilling S, Tapia T, Lips W, Tapia E,
Alvarado R, et al. Stigma toward mental illness in Latin
America and the Caribbean: a systematic review. Rev
Bras Psiquiatr. 2015;In press.
9. Saldivia S, Vicente B, Kohn R, Rioseco P, Torres
S. Use of mental health services in Chile. Psych Serv.
2004;55(1):71–6.
10. Markkula N, Alvarado R, Minoletti A. Adherence to
Guidelines and Treatment Compliance in the Chilean National
Program for First-Episode Schizophrenia. Psych
Serv. 2011;62(12):1463–9.
11. Killaspy H, Banerjee S, King M, Lloyd M. Prospective
controlled study of psychiatric out-patient non-attendance.
Br J Psychiatry. 2000;176:160–5.
12. González Uzcátegui R, Levav I. Reestructuración
de la atención psiquiátrica: bases conceptuales y guías
para su implementación. Washington, DC: Organizaión
Panamericana de la Salud; 1991.
13. WHO. Mental Health Action Plan 2013-2020. 2013.
14. de Almedia J, Horvitz-Lennon M. An Overview of
Mental Health Care Reforms in Latin America and the
Caribbean. Psych Serv. 2010;61(3):218–21.
15. Department of Mental Health. MINSAL. Estrategia
Nacional de Salud Mental: Un Salto Adelante. 2011.
16. Ritsher J, Otilingam P, Grajales M. Interalized stigma
of mental illness: psychometric propertieis of a new measure.
Psychiatry Res. 2003;121(1):31–49.
17. Peralta Martín V, Cuesta Zorita M. Validation of positive
and negative symptom scale (PANSS) in a sample of
Spanish schizophrenic patients. Actas Luso Esp Neurol
Psiquiatr Cienc Afines. 1994;22(4):171–7.
18. Alvarado R, Muñoz K. Estudio psicométrico de Cuestionario
Sevilla para valorar la calidad de vida en personas
con trastornos mentales severos, en una muestra
chilena. Rev Chil Neuro-Psiquiatr. 2006;44(4):249–57.
19. Alvarado ME, Garmendia ML, Acuña G, Santis R,
Arteaga O. Validez y confiabilidad de la versión chilena
del Alcohol Use Disorders Identification Test (AUDIT).
Rev Med Chile. 2009;137:1463–8.
20. Mittal D, Sullivan G, Chekuri L, Allee E, Corrigan PW.
Empirical Studies of Self-Stigma Reduction Strategies:
A Critical Review of the Literature. Psych Serv [Internet].
2012 Oct [cited 2015 Mar 11];63(10):974–81. Available
from: http://www.ncbi.nlm.nih.gov/pubmed/22855130
21. Shin S, Lukens E. Effets of psychoeducation for Korean
Americas with chronic mental illness. Psych Serv.
2012;53:1125–31.
22. Lukens E, Thorning H. Psychoeducational Family
Groups. In: Rubin A, Springer D, Trawver K, editors.
Psychsocial Treatment of Psychizophrenia. Hoboken,
New Jersey: John Wiley & Sons, Inc.; 2010. p. 89–144.
23. Phillips L, Schade D. Implementing Empowement
Psychoeducation in a Psychosocial Rehabilitation Setting.
Int J Psychosoc Rehabil. 2012;16(1):112–9.
24. Novak JD. Meaningful Learning : The Essential
Factor for Conceptual Change in Limited or Inappropriate
Propositional Hierarchies Leading to Empowerment
of Learners. Kelly GJ, Mayer RE, editors. Sci Edu.
2002;86(4):548–71.
25. Yanos PT, Roe D, West ML, Smith SM, Lysaker PH.
Group-based treatment for internalized stigma among
persons with severe mental illness: findings from a randomized
controlled trial. Psychol Serv [Internet]. 2012
Aug [cited 2015 Apr 21];9(3):248–58. Available from:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?arti
d=3413784&tool=pmcentrez&rendertype=abstract
26. White M. Re-Authoring Lives: Interviews and Essays.
Adelaide: Dulwich Centre Publications; 1995.
27. White M, Epston D. Narrative Means to Therapeutic
Ends. Adelaide: Dulwich Centre Publications; 1990.
28. Van Gennep A. The Rites of Passage. London: Routledge
& Kegan Paul; 1960.
29. Tomm K. Externalizing the Problem and IInternalizing
Personal Agency. J Strateg Syst Ther. 1989;8(1).
30. Ncube-mlilo N, Denborough D. Tree of Life. Randburg,
South Africa; 2007.
31. Denborough D. Collective Narrative Practice: Responding
to individuals, groups, and communities who
have experienced trauma. Adelaide: Dulwich Centre
Publications; 2008.
32. Yanos PT, Roe D, Lysaker P. Narrative Enhancement
and Cognitive Therapy: A New Group-Based Treatment
for Internalized Stigma among Persons with Severe
Mental Illness. Int J Gr Psychother. 2011;61(4):576–95.
33. Vasconcelos E. Abordagens Psicossociais. Reforma
Psiquiátrica e Saúde Mental na Ótica da Cultura e das
Lutas Populares. II. São Paulo: Hucitec; 2008.
34. Tait L, Lester H. Encouraging user involvement in mental
health services. Adv Psychiatr Treat. 2005;11:168–75.
35. Tansella M, Thornicroft G, Lempp H. Lessons
from community mental health to drive implementation
in health care systems for people with long-term conditions.
Int J Env Res Public Heal [Internet]. 2014 May [cited
2015 Apr 20];11:4714–28. Available from: http://www.
pubmedcentral.nih.gov/articlerender.fcgi?artid=4053874
&tool=pmcentrez&rendertype=abstract
36. Araujo K, Martuccelli D. Beyond institutional individualism:
Agentic individualism and the individuation process
in Chilean society. Curr Sociol [Internet]. 2013;62(1):24–
40. Available from: http://csi.sagepub.com/content/early/
2013/11/26/0011392113512496nhttp://csi.sagepub.
com/content/early/2013/11/26/0011392113512496.abstract
37. Yang LH, Valencia E, Alvarado R, Link B, Huynh N,
Nguyen K, et al. A theoretical and empirical framework
for constructing culture-specific stigma instruments for
Chile. Cad Saude Colet. 2013;21(1):71–9.
38. Pinto-Foltz M, Logsdon M, Myers J. Feasibility, acceptability,
and initial efficacy of a knowledge-contact
program to reduce mental illness stigma and improve
mental health literacy in adolescents. Soc Sci Med.
2011;72(12):2011–9.
39. Stastny P. Introducing peer support work in Latin
American mental health services. Cad Saude Colet.
2012;20(4):473–81.
40. Corrigan PW, Rafacz JD, Hautamaki J, Walton J,
Rüsch N, Rao D, et al. Changing stigmatizing perceptions
and recollections about mental illness: The effects
of NAMI’s in our own voice. Community Ment Heal J.
2010;46(5):517–22.
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